by Addie Hahn, Hospice Massage Therapist “When I tell people what I do for a living, they often respond with sympathy. “That must be so sad!” My client lay under a pale duvet in her bedroom at the top of a creaking staircase in an old Victorian house. Her smile was both warm and weary […]
Devin Sean Moss is an atheist chaplain and the host of The Adventures of Memento Mori podcast. Soon after our symposium, Phillip Hancock, who Moss spoke about on our stage, was executed by the state of Oklahoma. See Moss’s End Well talk about this experience HERE. You can also read more about the journey in […]
In this intimate conversation, our guest, a seasoned pediatric ICU nurse, delves deep into the juxtaposition of her unique professional backdrop with the broader end-of-life conversation. Hear more from Hui-wen Sato at the End Well Symposium on November 16th in Los Angeles. “I think the most significant societal belief about death and dying that needs to […]
While still in college, Rick Doblin dedicated his life to researching and championing psychedelics as medicines for therapeutic and personal growth. Through his work as a therapist, Rick has had the privilege to witness the impact psychedelics have made at the end of his clients’ lives and now offers us a vision for how we […]
Author of four books and innumerable sermons, Rabbi Steve Leder considers the joys and sorrows of the human condition and shares his faith in the human potential for growth through our very last days.
Bereaved mother and osteosarcoma research funder, Laura Sobiech, met Justin Baldoni when her son, Zach, was dying from cancer. Listen in as they discuss Zach’s hit song Clouds and the movie Justin made to honor Zach’s decision to forgo invasive treatment and live to the fullest during the final months of his life.
For young people with cancer, the support of others with the disease is often the lifeline that keeps them going. Yet the painful reality is that some of the friends they made during treatment don’t survive. Actor, director and producer Justin Baldoni talks with three young adults who have lived with cancer, Prince Aidoo, Stephen […]
Known for his wildly energetic performances, The Who’s Roger Daltrey was stopped short in 2015 by a severe case of viral meningitis. In the midst of excruciating pain and a grim prognosis, what he found to his surprise was peace. Roger shares how being so close to death gave him a perspective that provides comfort […]
Research shows that the majority of dying patients experience vivid and comforting dreams and visions of their dead loved ones. Physician and neurobiologist Christopher Kerr shares patient stories and offers a comforting conclusion for these physically distant times: No matter how physically isolated, the dying are not alone at the end of their lives.
One of the most poignant memories social worker and palliative care advocate Maya Scott has of her young daughter is when she told her parents she wanted no further medical treatment for her terminal condition. This wisdom, from a child who was not yet six, reminds us that patients often know their wishes towards the […]
A visionary in end of life care, Frank Ostaseski, shares how his series of recent strokes and the sudden switch in roles from caregiver to care-receiver have deepened his understanding of the surprising ways vulnerability can unlock personal resilience and cultivate compassion for oneself and others.
“Planning for our death is a powerful way to understand what choices to make in life,” suggests death doula Alua Arthur. By guiding people to define their vision of their death, Alua nurtures her clients’ innate strengths and vulnerabilities so they may gain insight into how they want to live, love and be remembered. A […]
Patient advocate and philosopher Adam Hayden has survived with glioblastoma far longer than most. Adam shares what he’s learned living in the uncharted territory between prognosis and practice and the challenges of navigating the promise of individualized medicine within a one-size fits all healthcare system.
Physician and palliative care advocate Aditi Mallick explains what palliative care and hospice are and how we might extend these important models of care to everyone with serious illness and at end of life.
Attorney, cancer survivor, and patient advocate Meg Gaines has seen how insurance denials, unexpected out-of-network costs, and unsympathetic employers can prevent people from getting quality care. Meanwhile, clinician dropout, depression, and suicide are mounting within the medical community. Meg believes that only if patients, communities, and clinicians work together can we heal our ailing healthcare […]
The quality of the end of a life of the very ill child deeply impacts family, friends and clinicians and can carry long-term consequences, especially for those who believe care could have gone better. Pediatric palliative care nurse and researcher Pam Hinds shares her learning about the value of thoughtful communication with the ill child […]
Certain she had breast cancer but dismissed by her physician, activist Bridgette Hempstead was forced to fight to get the testing she needed. In the aftermath of her treatment, she founded a community organization to enable other women of color to gain access to health education and quality care and to overcome the cultural biases […]
Existential despair, anxiety and depression are all too common at the end of life. Psychologist Anthony Bossis conducts FDA-approved research to understand how, through a single psilocybin-induced therapeutic experience, these symptoms might be alleviated or even transformed – into acceptance, enhanced wellbeing and personal meaning.
Drawing on his experience of living with cystic fibrosis, Jeremie Saunders, co-presenter of the Sickboy podcast, brings real people with life-altering illnesses to a growing audience. In an unparalleled combination of what he calls “bro-science,” humor, and compassion, Saunders inspires us to move beyond euphemism and platitude to speak directly of the things that matter […]