Designing From the Patient Perspective

End Well: Design for the End of Life Experience ePatient Fellowship Open for Applications

The call for health care design that puts the patient at the center is growing ever louder. The End Well Symposium is dedicated to giving this perspective a voice with a first of its kind gathering of design, tech, health care, policy, arts and education worlds with the goal of generating interdisciplinary innovation for the end of life experience that is human-centered. End Well launches this winter and invites patients to apply for its scholarship program as part of a movement to change our relationship to living and dying. Speakers at the one-day event include internationally renowned healthcare providers, artists, caregivers, patients, musicians, designers and entrepreneurs.

“A main tenet of human centered design is keeping the ‘end user,’ i.e. patients and caregivers, at the center of the conversation,” said Dr. Shoshana Ungerleider, End Well’s co-founder and a hospitalist at Sutter Health. “We feel very strongly that having patients join us in the dialogue at End Well will broaden the knowledge base and enrich the overall experience for everyone involved.”

The End Well Fellowship is an opportunity for patients to connect with others who are engaged in improving the end of life experience and amplify their voices in the movement. This program provides selected recipients with the opportunity and the means to attend the End Well symposium.

Applications for the End Well Fellowship open Friday, July 14 and close at 5 p.m. PT on Monday, Aug. 7.

Fellowship applicants must self-identify as an ePatient in order to qualify. We define an ePatient is someone who is equipped, enabled, empowered, and engaged in their health and health care decisions. ePatients will have a demonstrated history of community involvement — whether their community is defined locally or online — and a desire to educate and learn from others regarding our relationship to living and dying.

Full and partial fellowships will be awarded based on applicants’ merit with consideration given to financial need and allocated to maximize impact. Fellowship recipients will complete two projects that explore relationships between life and death and what shapes a human-centered end of life experience. These projects may be in any form including but not limited to blogging, long-form creative writing, poetry, music, video, podcast, drawing, or photography so long as they have a digital footprint to enable sharing with a wide and diverse audience.

“The goal for these projects is to drive thoughtful conversations about the end of life and create multiple points of entry for those conversations to begin,” said Sarah E. Kucharski, End Well’s fellowship program coordinator.

For additional details about the fellowship program and the End Well symposium, visit endwellproject.org/epatientfellowship.

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